Finally

Life has been pretty busy lately. Been working a lot and went to mom’s this past weekend.

And my stomach is starting to act out again. Not being able to eat is not my suggestion of a fast diet. I’ve been trying new meds and like all new meds, it’s taking a while to build up. It doesn’t have a long half-life so I’m hoping it builds up sooner rather than later.

This leaves me not feeling too bad for breakfast, queasy for lunch and unable to eat dinner. Add a dash of IBS and I”m freaking miserable.

But, in the midst of all this, I’ve been trying to scrapbook a new page. There were five pictures, some 4X6 and others 6X4. I was having a horrible time trying to find a layout that worked for all five. I looked at galleries, read blog posts, read some of the ebooks from Masterful Scrapbooking and I tried at least two layouts before I finally found a template that fit my needs.

I’m still trying to play with color and figure out my “style.”

In the end, I’m fairly pleased with this layout. I like that it tells a story throughout the photos.

I’d love some constructive criticism.

down the aisle

Almost all the materials came from an Echo Park kit called Sweet Day. I don’t remember where I found the paint splatter. The template was named kwresh03 but I don’t have any other information for it. I’m horrible at crediting the designers but I’m trying to get better at it, honest.

Where I’ve Been

I’ve spent the past few months healing. And I’m happy that I can finally say my tush is officially healed. I don’t have any further appointments with that doctor. By my last day, the entire office staff knew me by name. They were so incredibly helpful.

I was on top of the world feeling great. I had low stress, low anxiety and more energy. Then I started getting nausea. Not the normal everyday nausea but extreme nausea. Burning, churning and worst of all pain. It was so bad for a few days that I had to take off work and go to the doctor. It was not my regular doc, he was off that day but the office still got me in. I was diagnosed with a kidney infection, given antibiotics and sent home. The nausea really didn’t improve. Many days I went to bed right after work because the pain was just too much. The doctor called me back. She had run a culture and it turned out that I didn’t really have a kidney infection. But I was still in so much pain. X-rays, lab work & a CT Scan were all clear. At this point, I imagine the doctor just throwing her hands in the air “I give up!” because she told me to follow-up with my GP. I was basically dumped by that doc.

So, I followed up with my GP. I love my GP, he’s the best doctor I’ve ever had. We have conversations and my input into my treatment is just as important as his. And he likes the Boondock Saints! I sat in his office for a good thirty minutes as he listened to my symptoms. He was perplexed. It was so cute watching him trying to decide next steps because he really was at a loss. He said that odds were that if we had further tests, they’d all be clear. But he didn’t want to give me the “It’s IBS” diagnosis either. Together we decided that we would wait for a month to see if things righted themselves. I’ve kept a food diary (mostly), trying to exercise more (nearly impossible with the pain) and in May he’ll prescribe Nexium when it goes generic. I’m treating the symptoms with Alka Seltzer to take the edge off the nausea (the nausea meds they prescribed actually make me sicker) and strong pain meds.

My next appointment with the doc is tomorrow. Not much has changed in a month so we’ll have to see how that goes.

When I’m not in pain, I feel great. I’ve been relearning digital scrapbooking using Photoshop Elements (my poor copy of Photoshop CS4 has gone to a better place – in other words – it just don’t work no more.) and I’ve been working on a Project Life book.

And for an early anniversary present my husband bought me a Kitchen Aid Stand Mixer. I’ve wanted one of these for so many years. It’s so pretty sitting on my kitchen counter.

IMG_4027

 As I feel better & better, I expect to be around more. Till next time…

Update from the Doctor

We went to the doctor yesterday afternoon to follow up on this new wound opening. The doctor was disappointed but not surprised.

He wasn’t there for the original healing of this part of the wound. The working theory is that the top layer of skin healed but the underneath didn’t. This created another sinus cavity and the environment for the new tear.

To facilitate healing & to make sure that it healed right, we needed to take the “roof” off the cavity. This meant a little minor surgery to remove that skin.

I was not prepared for this. I expected possibly some answers or instructions on how to pack the wound. Instead I got 4+ shots of lidocaine & minor surgery.

I handled the news and surprise surgery really well if I do say so myself. No undo tears and a smile on my face. Husband also handled everything well. While he didn’t watch the procedure he did stay in the room & he did see pieces of his wife removed.

I am in a lot of pain. And while I realize this wound is nowhere near the original size it is about an inch long and half inch wide. This is at least another month of healing and twice daily dressing changes. I definitely feel like I’ve taken a step back in my healing process.

A New Wound

I’ve been off the wound vac for about three weeks. One day we were taking off the drape (fancy adhesive sheets that protect your skin) when part of my skin came with it. It was bad. Parts of my tush were red, raw & sadly bloody. I’d also developed a bad blister where the vacuum attached to my skin. After 5 weeks my body was finally rebelling against the machine. 

We put the wound vac back on, avoiding the most tender areas. Within 12 hours I was calling the nurse begging for them to remove the wound vac. I had developed another blister. This one was larger and more painful. And when the drape was removed my entire backside was inflamed. The nurse actually gasped when the drape was removed. “We can’t put that back on your skin!” So that Thursday was the last day I had the wound vac.

We went to the doctor and he was amazed at the size change. What was originally a 10-12 centimeter wound was now just 1 centimeter. The pain was better and things were looking good. The wound vac had worked. It was a time to celebrate.

We still had to do wound changes twice a day but after the wound vac, the daily changes were a breeze.

Then last week happened. Husband was doing a wound change when he noticed a new open area. “That wasn’t there before.”

*sigh*

The original wound site had healed. We were days from being finished with the whole thing when this new wound appeared. We’re not sure why it happened. It could be infection or part of the surgical area that didn’t heal right the first time or something else we’ve not even considered. We see the doctor today.

I’m back to sitting gingerly, if I sit at all. I have to take pain medication often times just so I can sit. It’s like the whole thing is starting fresh.

The original cyst appeared in April. I’ve been dealing with this for eight months, two surgeries and 5 weeks being attached to a machine.

Staying positive is exhausting.

Officially a Cyborg

On September 16 I had a second surgery. The surgery itself went really well.

Within a couple of weeks, the new wound was not healing. In fact it was splitting and getting worse.

My current surgeon, had us start packing it again and told us to go back to old routines. After three weeks we got a second opinion.

The new surgeon, my mother calls him the cute surgeon, didn’t really say that what went wrong was the previous surgeon’s fault. He did say that he wouldn’t have done either surgery the way the old surgeon had.

Up to this point we were packing my wound with what I called string gauze. It was about a 1/4″ wide and was packed into the tunneling that my wound was creating. My new surgeon packed my wound with 4″ rolled gauze. It was a huge size difference and a huge pain difference. We were supposed to pack the wound the same way every night. Husband couldn’t. I think he was worried about causing me pain and shoving so much gauze into the wound. It was just too complicated. The next day I started going to the hospital for daily dressing changes.

The good news is that the packing was just a temporary stop-gap until we could get a Wound V.A.C. I could tell you what V.A.C stood for but  I’m too lazy to go read the box. Basically it is a machine that continually vacuums the wound. It removes all the gunk that could prevent healing and pulls the skin together.

Since I have the box, many of you have figured out that I now have said V.A.C. I’m officially a cyborg. Part human, part machine.

I’m continually attached to a machine about the size of an old answering machine. There is a yard or more of tubing and I have to carry both V.A.C and tubing around with me at all times. There is a fancy little pouch for it which I can carry on one shoulder or cross-body for ease of use. It’s got a fancy touch screen and I can check the amount of suction and charge at any time. Luckily, it is a rechargeable battery so there are only a few hours at night that I have to remain plugged in.

This is a mobile V.A.C. I could go places with this machine but I probably won’t. No one besides myself and family really needs to see goop running through this tubing. And while I could come up with a lot of ways to camouflage the tubes and machine, there would always be a chance that someone could see something they didn’t want to and I just can’t do that to other people.

I can also shower with this machine. You clamp some tubes, turn it off and disconnect from the machine. However, I have to be super careful not to get water into the drape (sticky stuff that keeps everything in place) and especially not the foam which is the integral part of how the machine works. If I do, I could create a worse infection than I’ve already had. Those were miserable and painful, I want to avoid another infection at all costs. I will most likely end up washing my hair in the sink and resorting to sponge baths.

I will likely have this machine attached to my tushy for another 4-6 weeks. And this is the fastest healing option available to me.

Every other day (except weekends) a nurse will come to my house and replace the tubes, foam & drape.

For now, I can sit on my tush. This is a new development. I’ve become really good at just sitting on one cheek or thigh. I’ve been leaning sideways on the couch to work for the past two weeks. I’m hoping tomorrow I can work in the office and sit in my office chair.

The sitting upright might only last until they do a new change and add an additional kind of foam with enters the wound deeper. It’s been my experience that the more inside packing there is, the more pain I’ll be in and the less likely I’ll be able to sit normally.

I look at this machine with dread and optimism. One the one side, I’m basically a home bound stinky person for at least the next month. (I exaggerate a bit.) On the other side, I’m healed in half the time and this whole ordeal is over.

I have moments where I cry and moments where I laugh.

I keep moving forward.

Surgery. Again.

It’s been many weeks since I last posted. While I’ve been gone I’ve been working on getting healthy.

I’ve been having my meds monitored and working on healing the giant wound on my tush.

The med monitoring went great. I have a bill of health to return to work on 9/3.

My tushy hasn’t been so lucky. The infection healed quickly and I was off antibiotics in a week. I was told to keep doing what I was doing to treat the wound (gauze, tape etc.) for a couple of  weeks. There was no improvement.

Two weeks ago, the doctor said the wound would need to be packed. My poor husband had to go into the doctor’s office and learn to pack the wound. This was a level of intimacy that I was hoping to not reach the first two years of marriage. We created a routine and every night he packed the wound. I’m so grateful and really proud.

I went back for another follow-up yesterday. Justin was worried because once again there was no improvement and we should have been seeing miracle healing by this point. Turns out that he had reason to be worried. The infection caused the wound to not heal properly (actually not at all) and I would need another surgery. This time instead of excision of the cyst, it’s a debridement of the wound. My next surgery will be on 9/16.

This will be the third surgery I’ve had since March.

I had vacation scheduled to start on 9/16 but I wasn’t going to use it due to the fact that I’ve been on medical leave this whole time. Now with doctor’s orders I need to take a full week off before returning to work. There goes the vacation.

If this surgery doesn’t go well and the wound still doesn’t heal, I’ll be referred to a wound clinic where they have fancy & magical ways of healing wounds (this is my personal interpretation).  I really can’t imagine what it would mean for the surgery to not work, so I’m ignoring this piece of information as much as possible.

In the meantime, Justin and I will continue our routine to prevent the wound from getting worse and thus making the surgery that much worse.

I’m handling the news of another surgery fairly well. Crying, laughing, crying, laughing. You get the picture.

I hope my next post is a happier post.

Keep being plucky.

Being Plucky

Well this plucky housewife is definitely living up to the definition: Having or showing determined courage in the face of difficulties.

What has been going in my life you ask? (Even if you didn’t ask I’m gonna’ tell you anyway.)

First, I had a medication completely fail for the second time in 3 months and was hospitalized while they (nurses, doctors) tried to figure out what was going on. And it wasn’t the same medication mind you, two completely different meds. They are trying something new. Again. I am currently on medical leave.

In addition, my post-op wound has gotten infected. It is quite literally a pain in my tush. Not only is it a pain but it is a blooming hassle. I have to take a pillow with me wherever I go. Have to make sure I take the right antibiotics at the right time, the woozy feeling pain medication and keeping it clean are all stressful.

Lastly, and probably the heaviest on my heart, my great-uncle has passed way. He was a good man and I will miss him a lot. I keep thinking of all the great ways he touched my life. All the winks and “Ayups” thrown my way. He always had a cup of coffee with him. The time he dressed up as Elvis for a family reunion…it’s the little things that are easiest to forget and I don’t want to ever forget. The funeral is tomorrow.

I’m sure if I thought really hard I could come up with more woes, but three is enough for now.

Forgive my occasional absence as I work on my health and spend time with family.